Posted by: Jenn | May 23, 2009

The R word

I had another CT scan last week.  The tumor is still there, but is the same size it was 6 weeks ago.  Because the PET scan (which shows abnormal metabolic activity) was clean, the oncologist says we can reasonably assume that the “tumor” is just dead tissue at this point.  He expects that it will continue to decrease in size as my body gets rid of the dead cells.  I had two chemo cycles past the clean PET scan to “mop up” any stray cells, so now I am considered to be in remission – the wonderful “r” word.  Could it come back?  Yes, it could.  Because part of the tumor showed the characteristic genetic mutation of follicular lymphoma (a slow-growing, indolent type), a relapse would not be unexpected.  So I will have appointments with the oncologist every 3 months, and CT scans every 6 months for the next couple of years.  If it comes back, we’ll treat it again.

It doesn’t seem sufficient to just say “thank you” to everyone.  I am so grateful for each and every one of you.  I am grateful for your thoughts and prayers and help.  There were times during this process where I felt hopeless and abandoned and the comments left here were a source of comfort and hope.  I have only these two tiny words, but I offer them with the deepest humility and gratitude – thank you.

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Responses

  1. I’m so glad to hear the results are favorable. I hope you and Dan and the boys do something to celebrate this long journey and how well you all have managed to get through this together. I know that the ongoing monitoring means it is not really “over”, and there is always a possiblity of a future occurence. But, you have a determination and circle of support that will help you with anything the future may bring. Good or bad.
    You’ve handled this with a grace and poise that is just amazing. You always manage to earn my utmost respect and admiration. This time is no different. Love you so much, and congratulations!
    Carey

  2. Thank you for letting us know of your good news. Your illness has made you such a strong young women, and you have made me admire you more and more every day. Your boys have proven to be your greatest support system anyone could ask for. Continue to keep us up to date and you will always remain in our prayers.
    Love to you and your boys
    Uncle Eddie and Aunt June

  3. We are so happy for you! It’s so nice to hear the good news. You and your family will continue to be in our thoughts and prayers.

    Love,
    Uncle Joe and Aunt Kris
    Great Falls, Montana

  4. What wonderful news! I am so happy for you, Dan and the boys.

    Love,
    Michelle

  5. There really aren’t words to say how happy we are for all of you. We can’t wait to see you at Suscapalooza & share our joy in person!!!

    Love, Tree, Brian, & Katie

  6. Wow, we are thrilled for you and your family! I can’t believe how much strength and courage you have shown. Thank you for sharing that with us!

    God bless you,
    Uncle Ken and Aunt Jenny

  7. It’s incredible that in just 5 months you went from having an enormous, insidious tumor inside you to having conquered it and being in remission. Now you know that you have the strength inside of you and in all of your loved ones to get through such an experience. We are so happy for you and your family and can’t wait to see you all soon!

    Love, Rena, Steve and Marlee

  8. Wow!!!!!!!!!! I’m speechless!!!!!!!!! What fabulous news – can’t wait to give you a big “congrats” hug in person at the Suscas!


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